In Case You Missed It
Hepatitis C In America 2017 was conducted online May 3, 2017 – June 26, 2017 and released through Health Union’s online community, HepatitisC.net.
If you missed the following survey, I highly suggest you read the results over at HepatitisC.net.
Published August 28, 2017
Published August 28, 2017
A diagnosis of hepatitis C affects more than just the body. Many don’t realize the full impact hepatitis C can have on someone’s life. We conducted a survey to better understand the symptoms and experiences of people living with hep C. The Hepatitis C In America 2017 online survey gathered insights from 609 individuals who tested positive for hepatitis C infection and have been diagnosed with chronic hepatitis C infection. Of the 609 survey-takers, 49% were reported to be cured of hep C and 51% were not yet cured at the time of the survey.
Read it here..........
Published Oct 4, 2017
Survey: Hepatitis C Patients Delay Treatment Due to Cost Concerns
— Most Uncured Respondents Not Actively Treating the Disease —
— Most Uncured Respondents Not Actively Treating the Disease —
October 4, 2017
“Hepatitis C In America,” a new Health Union national survey of 609 individuals diagnosed with chronic hepatitis C infection, shows that more than one-third of uncured respondents were not currently under the care of a healthcare provider (HCP), typically due to financial concerns.
“Hepatitis C In America,” a new Health Union national survey of 609 individuals diagnosed with chronic hepatitis C infection, shows that more than one-third of uncured respondents were not currently under the care of a healthcare provider (HCP), typically due to financial concerns.
While new Hepatitis C treatment options are revolutionizing care, many patients report financial challenges (53 percent) and insurance denial/lack of insurance coverage (25 percent), along with apprehension about treatment and side effects, as common barriers to accessing treatments. The survey also found most (86 percent) respondents with current chronic Hepatitis C infection were not actively treating their condition at the time of the survey.
Hepatitis C is the most common blood-borne infection in the United States and can lead to serious complications including cirrhosis and liver cancer. According to the Centers for Disease Control and Prevention (CDC), Hepatitis C is the leading cause of liver transplants in the U.S.
In this year’s survey, 49 percent of respondents reported they were cured of Hepatitis C and 51 percent were not yet cured at the time of the survey. Seventy-three percent of all respondents had received treatment for Hepatitis C from their healthcare professional; however, 21 percent of treated patients did not achieve a sustained viral response – considered “cured.”
Of those who had been treated, 38 percent reported waiting more than five years from diagnosis to begin treatment. Additionally, one out of four treated patients reported they had to stop a treatment early, often due to medication side effects.
The survey also found a desire to know more about the condition, with most respondents wishing they had more information at the time of diagnosis, particularly about Hepatitis C’s impact on their bodies and long-term complications of the virus. Prior to their diagnosis, one-third of respondents were not aware of Hepatitis C.
Hepatitis C is the most common blood-borne infection in the United States and can lead to serious complications including cirrhosis and liver cancer. According to the Centers for Disease Control and Prevention (CDC), Hepatitis C is the leading cause of liver transplants in the U.S.
In this year’s survey, 49 percent of respondents reported they were cured of Hepatitis C and 51 percent were not yet cured at the time of the survey. Seventy-three percent of all respondents had received treatment for Hepatitis C from their healthcare professional; however, 21 percent of treated patients did not achieve a sustained viral response – considered “cured.”
Of those who had been treated, 38 percent reported waiting more than five years from diagnosis to begin treatment. Additionally, one out of four treated patients reported they had to stop a treatment early, often due to medication side effects.
The survey also found a desire to know more about the condition, with most respondents wishing they had more information at the time of diagnosis, particularly about Hepatitis C’s impact on their bodies and long-term complications of the virus. Prior to their diagnosis, one-third of respondents were not aware of Hepatitis C.
“Typing in those words, ‘Hep C,’ causes a lot of trauma,” said Karen Hoyt, a HepatitisC.net patient advocate. “But we also want to find out what’s going on in our own bodies. An online support network like HepatitisC.net helps us know we’re not alone and provides a sense of connection for us.”
The survey also showed many people living with Hepatitis C make lifestyle changes following their diagnosis. Some of these changes include staying hydrated, avoiding alcohol, maintaining a healthy diet, getting more sleep, and managing stress.
“There’s nothing like the fear of a serious health condition to motivate you,” Hoyt added, “and making lifestyle changes can fight feelings of powerlessness and lack of control.”
“The findings from ‘Hepatitis C In America’ reflect opportunity for the pharmaceutical industry and patients alike,” said Health Union Senior Vice President, Insights, Anna McClafferty. “Among respondents who aren’t cured, more than half have never been treated. For these patients, financial concerns, lack of health insurance, and worries about the treatments themselves are primary barriers to starting therapy. Given these findings, it’s not surprising to see so many people with Hepatitis C interested in clinical trials and aware of new treatments in development.”
More details about the survey may be available upon request; email Insights@health-union.com.
https://health-union.com/news/hepatitis-c-patients-delay-treatment-due-to-cost-concerns/
“There’s nothing like the fear of a serious health condition to motivate you,” Hoyt added, “and making lifestyle changes can fight feelings of powerlessness and lack of control.”
“The findings from ‘Hepatitis C In America’ reflect opportunity for the pharmaceutical industry and patients alike,” said Health Union Senior Vice President, Insights, Anna McClafferty. “Among respondents who aren’t cured, more than half have never been treated. For these patients, financial concerns, lack of health insurance, and worries about the treatments themselves are primary barriers to starting therapy. Given these findings, it’s not surprising to see so many people with Hepatitis C interested in clinical trials and aware of new treatments in development.”
More details about the survey may be available upon request; email Insights@health-union.com.
https://health-union.com/news/hepatitis-c-patients-delay-treatment-due-to-cost-concerns/
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