January 2014
Hepatitis Newsletters
Welcome to 2014 folks, where did the year go? Once again we have an array of informative newsletters put together by incredible people completely devoted to HCV awareness and education.
**Updated Jan 11 to included Transplant Recipients International Organization
**Updated Jan 10 - NYC Hep C Task Force
**Updated Jan 7 - NIH News in Health
**Updated Jan 4 - Hepatitis Foundation International.
TRIO is an independent, not-for-profit, international organization
committed to improving the quality of life of transplant candidates,
recipients, their families and the families of organ and tissue donors.
Through the TRIO Headquarters and a network of chapters, TRIO serves
its members in the areas of: Awareness, Support, Education, and
Advocacy. This TRIO web site is filled with information about these
areas and our many programs, including local chapter contact
information, so wander around these pages to learn more about TRIO or
contact your local TRIO chapter. If you still don't find answers to what
you are looking for, please email us at
info@trioweb.org or call 1-800-TRIO-386.
UNOS News
Full 3-part series: Too Risky to Transplant (3 prior articles in one place)
Why a Woman's Heart Is a Bad Fit for a Man
Transplantable organs go to waste (part 3 of 3)
Categories
Reinventing the Donor Kidney System: A Q&A with Dr. Yolanda Becker (Science Life)
Transplant centers pull back to avoid sanctions (part 2 of 2)
Patients denied transplants as donor organs are discarded (part 1)
2nd child to challenge organ transplant rules gets new lungs (NBC News)
This Months Newsletter
January Newsletter
Rose parade float - so how many TRIO members are in or help with that DLA float?
What do you think - of the redesigned TRIO web site . . .
In just a short time since the launch we have had thousands of visitors from all around the world visit the new web site. How about you? If you haven't already bookmarked the site, do it now at http://trioweb.org
Newsletter Archives
Check Us Out On Twitter and Facebook
NYC Hep C Task Force
The
New York City Hepatitis C Task Force is a city-wide network of service
providers and advocates concerned with hepatitis C and related issues.
The groups come together to learn, share information and
resources,
network, and identify hepatitis C related needs in the community.
Committees form to work on projects in order to meet needs identified by
the community.
NYC Viral Hepatitis Monthly E-Newsletter
January 2014 NYC Hep ABC Newsletter
In This Issue
NY Hep C ‘Baby Boomer’ Testing Law
NYS Hepatitis C Testing Law. 2171 requires healthcare providers to offer
hep C test to
baby boomers.
Requires full diagnostic testing for those who screen anti-body positive and either follow-up health care or referral to a health care provider who can provide follow-up health care.
Takes effect January 1, 2014
Read the ‘Hep C Testing Law Dear Colleague Letter‘ from Governor Cuomo.
NYS HCV testing law FAQ_12-9-2013 (PDF). Hep C Testing Law: Frequently Asked Questions from the NYS Department of Health.
Webinar |
Hepatic Encephalopathy: The Patient Perspective. American Liver Foundation. January 23rd (7 PM - 9:30 PM ET).
Beyond the Hype: What Sofosbuvir Means—and Doesn’t—for Global Hepatitis C Treatment.
Open Society Foundations.
And more.......
Click here to start reading....
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January Features
Avoiding Anemia Boost Your Red Blood Cells
Anemia is a common blood disorder that can leave you feeling exhausted and sluggish. Many types of anemia are mild and short term. But the condition can become serious if left untreated
for a long time.
Read more about anemia
Dealing with Dementia
When Thinking and Behavior Decline
Feeling forgetful and confused may be a normal part of life. But if thinking problems or unusual behavior start to interfere with everyday activities, these could be signs of a brain condition known as dementia.
Read more about dementia.
Find Us On Facebook
Hepatitis Foundation International (HFI)
The Hepatitis Foundation International is dedicated to liver health and the prevention of liver related diseases. We inform and educate by making available reliable and up-to-date facts. We want you to make well-informed decisions for yourself and your loved ones' health and well-being. We are proud to present this website as your personal Internet gateway to hepatitis information and liver care.
Health-e Bytes™
Hepatitis Alert / Partners In Liver Wellness Newsletters
Click Here To Download Newsletter
Lifestyle...
— Obesity’s Impact on Kidneys
— Tighter Regulations Make for Safer Drugs
— Plain Soap and Water Still the Best
Grand Rounds...
— Understanding the Clinical Trial Process
— Reducing Viral Load — Saves Lives
In the Pipeline...
— Hepatitis C Phase III Drugs Treatment Pipeline
Helping Hands... Holiday Giving
Advocacy Alert: Legislation expanding hepatitis B and C education, testing and linkage to care services
T.I.PS. — Qualifying for SSI Disability with HCV; Free Consumer Action Handbook
Stay Updated
HCV Advocate
The HCV Advocate newsletter is a valuable resource designed to provide the hepatitis C community with monthly updates on events, clinical research, and education
January 2014 HCV Advocate
In This Issue:
HCV Advocate's Top News of 2013
It is usually difficult to come up with the number 1 item and this year was no exception; so we decided that two different news items topped our list.....
Alan Franciscus, Editor-in-Chief
HEALTHWISE: New Hepatitis C Drugs: Disappointment or Hope?
Lucinda K. Porter, RN
Snapshots
Lucinda K. Porter, RN
HCV Advocate Eblast
Stay informed on the latest news...click here to register for email alerts
HEPATITIS B
HBV Journal Review
by Christine Kukka
HCV Advocate News & Pipeline Blog!
Be sure to check out the latest clinical trial postings at the
HCV Advocate News & Pipeline Blog. Just click on the links to the Drug Companies below the banner to see which drugs are in trials right now, where the trials are, and how to register for one.
Connect With HCV Advocate
HepatitisWA
Perth, Australia
HepatitisWA (Inc) is a non-profit community-based organisation providing free services to the community. HepatitisWA aims to assist in obtaining the best possible care and support for people affected by hepatitis, reducing discrimination and stigma directed at people living with viral hepatitis and raising community awareness in relation to hepatitis.
The HepatitisWA Newsletter is a quarterly publication.
With each edition we endeavour to capture new developments in hep C treatment, management and other relevant topics.
This issue we cover the following:
• Ed's Story - Personal Perspective
• Going Viral - Viral Hepatitis News
• Hepatitis B Mapping Project - Feature
• Rising deaths from hep C spur New York city action - Community News
• Closer than you thINK - Feature
• Staying on track when eating out - Health & Lifestyle
• Sleep management and hepatitis C - Health & Lifestyle
HepCBC Hepatitis C Education and Prevention Society
HepCBC’s MONTHLY NEWSLETTER
January Newsletter (PDF)
The hepc.bull, has been “Canada’s hepatitis C journal” since the late 1990′s and has been published nonstop since 2001. The monthly newsletter contains the latest research results, government policy changes, activities and campaigns you can get involved in, articles by patients and caregivers, and a list of support groups plus other useful links.
In This Issue
WHO TO TREAT FIRST?
With approval of protease inhibitors, so many people want to start treatment, that waiting lists have developed. A limited number of people can be started on treatment each week. At the recent meeting in Boston, the AASLD (American Association for the Study of Liver Diseases) discussed who should be treated first.
MICHAEL’S STORY
Editor: Michael is a long-time member of HepCBC. The CanHepC list and the HepCan list. He and I have been emailing frequently since 2004. He has volunteered for HepCBC and has provided caring support and information to many fellow Hep C sufferers in our community, both by email and in person. Perhaps you have spoken to him on the phone.
ROB’S STORY
Six years later, I knew I had to go back. He welcomed me and said, “I told you I’d see you later.” So I went on the meds, and experienced ALL the negative symptoms of the meds and wound up in the hospital for a week.
Larry Hagman
Larry Hagman, perhaps best known for his role as J.R. Ewing of the TV series “Dallas”, died November 23 at age 81. His death was caused by complications from throat cancer, although he suffered from Hep C and liver cancer, too.
HCV Support Groups in Canada
AND MORE!!
Stay Connected
Caring Ambassadors Hepatitis C
The Caring Ambassadors Hepatitis C Program (CAP-Hepatitis C) is a national non-profit organization devoted exclusively to meeting the needs of the hepatitis C community.
The Caring Ambassadors Program mission is to help improve the lives of those affected by long-term diseases through advocacy, information, and support.
CAP News
In The News
CAP Hepatitis C Literature Review
December Monthly Pubmed Review of the most relevant research on hepatitis C.
Abstract Index
CLINICAL TRIALS, COHORT STUDIES, PILOT STUDIES 1 - 5
BASIC AND APPLIED SCIENCE, PREC LINICAL STUDIES 5 - 13
HIV/HCV COINFECTION 13 - 18
COMPLEMENTARY AND ALTERNATIVE MEDICINE 18 - 19
MISCELLANEOUS WORKS 19 - 24
LIVER CANCER 24 - 30
GI & Hepatology News
GI & Hepatology News is the official newspaper of the AGA Institute and provides the gastroenterologist with timely and relevant news and commentary about clinical developments and about the impact of health-care policy. The newspaper is led by an internationally renowned board of editors.
January Issue - Please Check Back
Stay connected
American Liver Foundation
Liver Lowdown is the monthly general interest e-newsletter of the American Liver Foundation.
In accordance with the Foundation’s mission, the e-newsletter is disseminated to provide information about the prevention, treatment and cure of liver disease, as well as the organization’s research and advocacy endeavors.
Content includes updates about the Foundation’s educational and signature programs; an in-depth focus on specific types of liver disease, and profiles of liver patients’ and caregivers’ personal experiences
Recently Diagnosed with HCV?
If you or a loved one thinks you may be
at risk or has been recently diagnosed with Hep C, we encourage you to go through this site to find information on risk factors,
diagnosis,
treatment and
support.
January Newsletter - Check back
December Newsletter
INSPIRE: CONNECT WITH OTHER LIVER DISEASE PATIENTS
The
Inspire.com website builds online health and wellness communities for patients and caregivers, in partnership with national patient advocacy organizations. In fact, Inspire.com has more than 80 exclusive national patient organization partnerships and over 300,000 members.
As we recognize the value of patient engagement, we have partnered with Inspire.com to create a global resource community focused on liver disease.
Take action now: Log on to
www.inspire.com/groups/american-liver-foundation/ to become a member of the American Liver Foundation group, complete your profile, and join the specific liver disease discussions that interest you. The American Liver Foundation Inspire groups can also be accessed by clicking on the Inspire logo on our website’s home page:
www.liverfoundation.org
ALF Website
The Hepatitis C: Diagnosis, Treatment, Support website
1-800-GOLIVER (1-800-465-4837)
In addition, questions sent on e-mail to info@liverfoundation.org will be promptly answered.
Join Our Mail List
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Check Us Out On Twitter and Facebook
Hepatitis C news, is an online community for those living with hepatitis C. Join us for news, views and features about hep C, read the real-life experiences of our guest bloggers, and learn about living well with the condition.
New In January
The effects of medical marijuana in treating hepatitis C
January 10th, 2014
Earlier this week New York became the 21st state to legalise marijuana for medical purposes.
Five tips for a healthy 2014
As we reach the New Year, it’s a good time to think about some simple steps that can be taken for a happier and healthier you
Read More...
Talking to friends and family about hep C
Finding out that you have hepatitis C can be a shock. You may experience a range of emotions, from disbelief to anger, sadness or fear.
While it might be tempting right now to pull away from friends and family, research has shown that the support of friends and family is vital when living with a medical condition. Don’t underestimate the value of simply having someone to talk to.
Read more..
Check out
Hepatitis C News YouTube Channel
Stay connected
The Hepatitis C Mentor and Support Group (HCMSG)
The Hepatitis C Mentor and Support Group (HCMSG) was founded to address the lack of awareness, support, and services for people living with Hepatitis C (including patients co-infected with other conditions such as HIV/AIDS and Hepatitis B), and patients in need of or living with liver transplants. To address these needs, we provide resources and services to foster the development and operation of successful support groups for Hepatitis C and co-infected patients. These services are provided to prospective and current support group facilitators FREE OF CHARGE. In the future, we will also provide one-on-one mentoring services to Hepatitis C and liver transplant patients.
Assistance Programs for Patients
A partial list of programs to help people who do not have insurance coverage or financial resources to pay for testing, medical care, and medications to treat and cure Hepatitis C.
HCMSG Blog
News and Updates
We welcome your suggestions on what you would like to see in upcoming issues and any stories you want to share.
We can be reached at hepatitisCmsg@gmail.com
Find Us On Twitter and Facebook
Canadian Liver Foundation
News Updates
Canadian Liver Foundation’s Newsroom
Liver in the News
Newsletter
Livewell is our e-newsletter exclusively for friends and donors of the Canadian Liver Foundation. Each issue highlights liver health issues, exciting research projects, upcoming events and includes profiles of our outstanding volunteers and donors.
The Livewell newsletter is distributed 4x per year. Please
click here to fill in the form and we will be happy to add you to our subscriber list!
CLF updates you and interacts with you on all things liver
Stay Updated
Hep C Connections - Website
Our mission is to educate the general public about hepatitis C and to provide resources and support for those affected by the virus. Hep C Connection offers a helpline to answer your questions regarding hepatitis C (HCV). You can expect respect, patience & understanding, in clear, jargon-free language from our staff & volunteers. Call 1-800-522-HEPC (4372) today!
Newsletter
December 2013 -- Check back for -
January Newsletter
The Flu and Hepatitis C: High Risk of Complications
As we enter the months when we see an increase in the number of flu cases, you should ask your doctor about the flu vaccination because it has been shown to reduce a patient's risk for hospitalization from complications associated with the flu such as pneumonia, bronchitis, sinus infections and ear infections. Patients with chronic hepatitis C, particularly patients with cirrhosis, that fall ill with the flu may be at an increased risk for serious complications compared to the general population.
Full Article
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ACP Internist provides news and information for internists about the practice of medicine and reports on the policies, products and activities of ACP
Current Issue -
January 2014
Gastroenterology
Long-term view for chronic pancreatitis
By Terri D’Arrigo
Unlike acute cases of pancreatitis, chronic cases present with varying degrees and types of pain, and without other clinical indicators such as calcification or damage to pancreatic ducts. It’s best to refer to a gastroenterologist early to clarify the diagnosis, so the internist can better manage the patient.
More
Washington Perspective
Health reform’s winners and losers: by the numbers
By Robert B. Doherty
Breaking down the numbers offers insight into who stands to gain the most from the reforms provided by the Affordable Care Act. But the broader coverage offered under the law means that the country as a whole is better off.
More
ACP
Blog
Reflections on a near-death experience
Now that it has been nearly two months since my cardiac arrest and resuscitation, I have finally found the leisure and the motivation to put fingers to the keyboard to gather some thoughts and feelings about it. Of course these include at least in part the sort of changes in attitude and philosophy people are commonly supposed to experience, but for the most part, my own experience seems different.
More
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Bloggers Corner
Of interest this month;
Hepatitis C: Resolve to Make Small Steps for Big Gains
By
Lucinda Porter, RN |Published January 1, 2014
“Small deeds done are better than great deeds planned.” ~Peter Marshall The healthier you are, the easier it is to live with hepatitis C. We all know that we are supposed to exercise, eat better, and maintain a normal...
15 Steps to Recovery from Hepatitis C Treatment
Be on guard NOT to jump right back into your normal routine or take on more than your ready for right after you finish treatment. Just because treatment is finished does not mean your body is recovered yet. Pace yourself and give your body time to rebuild
Stay warm, see you all soon.
Check back for updates
Newsboy Photo Credit -
bangordailynews.com
