Sunday, May 8, 2016

Hepatitis Newsletters and Updates; May is Hepatitis Awareness Month

May Hepatitis Newsletters and Updates
Each month this blog provides a link to Hepatitis Newsletters published by advocacy groups devoted to increasing awareness and providing information about viral hepatitis, with a focus on HCV.

May is Hepatitis Awareness Month folks, and May 19th is National Hepatitis Testing Day!

Start here to find out what this month long campaign is all about, or sift through this months articles and newsletters.

Get Involved
Be #HepAware Thunderclap on May 19th at 12:00 p.m. EDT/9:00 a.m. PDT
Thunderclap is a tool that allows supporters to sign up in advance and share a unified message simultaneously across social media platforms to create a wave or “thunderclap.” Joining the Be #HepAware Thunderclap is easy:
  • Visit the Be #HepAware Thunderclap website.
  • Choose “Support with Twitter”, “Support with Facebook”, and/or “Support with Tumblr” to join in this message with CDC.
  • Authorize Thunderclap to use your account to send out a one-time post on May 19th
  • After you sign up, get the word out to your followers and ask them for their support.
  • Watch on May 19th at 12:00 p.m. EDT/9:00 a.m. PDT as we raise awareness of viral hepatitis and help others be #HepAware!
  • Email if you have any questions.
*Please note that Thunderclap will only post the message above to your account one time on May 19, 2016. After the post is complete, they won’t post any additional messages. For more Frequently Asked Questions see

Partial List: Free Hepatitis Testing

Three major events promote month of May as Hepatitis Awareness Month
Although National Hepatitis Testing Day is May 19, San Francisco hepatitis service providers will be out in force on May 18 at the Asian Heritage Festival in the Tenderloin. Produced by AsianWeek Foundation, San Francisco Hep B Free, the San Francisco Hep C Task Force and the Hep B/C Alliance, they will again collaborate with local agencies to offer hepatitis B and C education and testing, along with vaccinations for hepatitis A and B.
Read more here.... and here; May 2016 Hepatitis Awareness Month Events

Colorado Test Sites for National Hepatitis Testing Day, PDF 
Read more here.....

Sanford, Fla. In observance of National Hepatitis Awareness Month, the Florida Department of Health in Seminole County (DOH-Seminole) is providing free hepatitis testing during the month of May.
The intent of the annual observance is to raise awareness about the global impact of viral hepatitis and the importance of preventing hepatitis-related liver disease, including liver cancer.The Hepatitis Prevention Program in Seminole County will provide free hepatitis testing Monday through Friday from 8 a.m. to 4 p.m. at 400 West Airport Boulevard, Sanford.
Visit for more information about the Hepatitis Prevention Program

New York
Free Manhattan Hep B and C Testing Event
May 19, 2016 10:00 am – 3:00 pm
Lobby of Mount Sinai Center for Advanced Medicine
17 East 102nd Street, Manhattan New York
Stop by the Mount Sinai Viral Hepatitis Awareness Table
to receive free Hep B and C testing, and to learn more about resources available within the community.
For more information, click here
View all events, here.

Public Health Offering Free Rapid Hepatitis C Testing
Get free Hepatitis C test in Montgomery County
Health Outreach Office
201 Riverside Drive Suite 1-C
Dayton, OH, 45405
Testing hours: Mon. – Fri. 8:00 am - 3:30 pm
Phone: (937) 496-7133 
Read more here....

Free Testing Offered During Hepatitis Awareness Month
In order to promote individual and community knowledge, the City of El Paso Department of Public Health is joining other local and state agencies across the county to celebrate Hepatitis Awareness Month.
As a part of this effort, the HIV Prevention Program is offering free Hepatitis C testing every Friday this month (May 6, 13, 20 and 27) from 8:00 to 11:30 amand 1:00 to 5:00 pm  (222 S. Campbell, Room 105)
Read more here...

On Thursday, May 19, a hepatitis C screening will be offered free of charge at three locations in Clallam County
Screening will be performed by trained medical personnel and nursing students and requires a finger stick to collect a small drop of blood. Testing takes about 30 minutes to complete. Although walk-ins are welcome, you are encouraged to call 457-4431 to schedule an appointment.
Sequim/Port Angeles locations:
• Volunteers in Medicine of the Olympics — 819 E. Georgiana St., Port Angeles
• Dungeness Valley Health & Wellness Clinic — 777 N. Fifth Ave., Suite 109, Sequim
Read more here...

It’s Hepatitis Awareness Month: Five Reasons We Don’t Get Tested, and How to Overcome Them
This month, get tested for hepatitis B. Go to your doctor’s office, or get tested at a local community health center, Hep B United screening event, STI clinic, needle exchange program, or at a Planned Parenthood clinic.  For a partial list of screening events held across the country, click here.

National Aboriginal Hepatitis C Awareness Campaign
Planned Activities 2016
Launch of Hepatitis C Awareness Month
We are still planning this year’s campaign. Please come back as this page will be updated as information becomes available. The Canadian Aboriginal AIDS Network, Pauktuutit Inuit Women of Canada and Hepatitis Services, BC Centre for Disease Control are partnering on the National Aboriginal Hepatitis C Awareness Campaign having agreed upon a mutual desire to work together to recognize the diversity and rights of Aboriginal Peoples regardless of residency, including the rights of Aboriginal Peoples to access and benefit from hepatitis C (HCV) prevention education and awareness, as well as related care, treatment and support to maintain a quality of life in a culturally appropriate manner.


Your Guide To  Hepatitis 
Hep is an award-winning print and online brand for people living with and affected by viral hepatitis. Offering unparalleled editorial excellence since 2010, Hep and Hep Magazine are the go-to source for educational and social support for people living with hepatitis.

Blogs At Hep
May Is Hepatitis Awareness Month: Learn How You Can Help
Hepatitis Appropriations Partnership
May 6, 2016 • Lucinda K. Porter, RN
The Hepatitis Appropriations Partnership, raising hepatitis awareness on the federal level

The Value of Life; the Price of Health
May 5, 2016 • Greg Jefferys
How the price of the hepatitis C drug, sofosbuvir may have been determined 

Help-4-Hep Gives Help
Your Guide To Hepatitis
HEP In Print 
These special issues of Hep provide information and education for people living with viral hepatitis, including hepatitis C (HCV), hepatitis B (HBV) and hepatitis A (HAV).

Today's Headlines

HEP Exclusives
Original Articles

Check It Out....
NVHR has officially launched its blog on HepMag! We will be posting blogs twice a month on various hepatitis B and C related topics. Check out our blog profile to read our most recent posts, including a recap of Hepatitis on the Hill and hepatitis C elimination efforts in the Cherokee Nation.

Save The Date - Tuesday May 10th
Webinar: Raising Hepatitis C Awareness: It Takes a Community
At 4:30pm ET on Tuesday May 10th, 2016, join presenters Ryan Clary, Corrina Dan and Lucinda Porter for a roundtable discussion about Hepatitis Awareness Month, moderated byTina Broder

Ryan Clary is the Executive Director for the National Viral Hepatitis Roundtable (NVHR); Corinna Dan, RN, MPH, is the viral hepatitis policy advisor in the Office of HIV/AIDS and Infectious Disease Policy at the U.S. Department of Health and Human Services (HHS); Lucinda Porter, RN, is a contributing editor at and long-time columnist for the HCV Advocate. Tina Broder, MSW, MPH, is the Senior Program Manager for NVHR.
Updates Around The Web
Deaths from hepatitis C have reached an all-time high. That's according to a report released by the Centers for Disease Control and Prevention. The announcement also says the disease kills more Americans than any other infectious disease. Despite new treatments that can cure many cases of hepatitis C, the report shows 19,659 people died of it in 2014. One issue may be many people don't know they have hepatitis C so they don't seek treatment.
In this Mayo Clinic Minute, reporter Vivien Williams talks to infectious diseases specialist Dr. Stacey Rizza about new and effective treatments for hepatitis C.
Watch: The Mayo Clinic Minute

The American Journal of Managed Care published a special issue focused on hepatitis C screening, treatment, and treatment access. The National Viral Hepatitis Roundtable (NVHR) Executive Director, Ryan Clary, published an opinion piece in this issue.
"It’s time for private insurers and Medicaid programs to give all Americans suffering from this devastating disease a chance at a cure."
The American Journal of Managed Care - 2016
It’s Time to End Insurance Restrictions on Life-Saving Hepatitis C Treatments
Real-World Outcomes of Ledipasvir/Sofosbuvir in Treatment-Naïve Patients With Hepatitis C
Sofosbuvir Initial Therapy Abandonment and Manufacturer Coupons in a Commercially Insured Population
Improving HCV Cure Rates in HIV-Coinfected Patients—A Real-World Perspective
Does Patient Cost Sharing for HCV Drugs Make Sense?
Value of Expanding HCV Screening and Treatment Policies in the United States
The Wider Public Health Value of HCV Treatment Accrued by Liver Transplant Recipients
Costs and Spillover Effects of Private Insurers’ Coverage of Hepatitis C Treatment
Coverage for Hepatitis C Drugs in Medicare Part D
FDA has revised a draft guidance-Chronic Hepatitis C Virus Infection: Developing Direct-Acting Antiviral Drugs for Treatment.
Significantly, FDA says it now expects sponsors of new HCV DAAs to conduct at least one head-to-head Phase III trial against an approved comparator. "Ideally … an active comparator in a Phase III, controlled trial should be an antiviral drug that is recommended for treatment of chronic HCV infection by authoritative scientific bodies based on clinical evidence that also reflects current practice," FDA writes.

Update: Upcoming and Recruiting Hepatitis C Clinical Trials
As a point of reference a few links have been provided offering interim results from ongoing hepatitis C clinical trials presented last month at The International Liver Congress 2016.  Both the articles and clinical trials have been indexed by pharmaceutical company.
May Newsletters

HCV Advocate
The HCV Advocate newsletter is a valuable resource designed to provide the hepatitis C community with monthly updates on events, clinical research, and education.

May Newsletter

HealthWise – Hepatitis C Treatment Side Effects by Lucinda K. Porter
The Five – The International Liver Congress (ILC): 2016 by Alan Franciscus.
What’s Up! We have reviewed and updated the following:
The Glossary of Medical Terms
The Easy C Fact Sheets
What is Steatosis
Top Ten Healthy Habits

View all newsletters here....

Connect With HCV Advocate

NYC Hep C Task Force
The New York City Hepatitis C Task Force is a city-wide network of service providers and advocates concerned with hepatitis C and related issues. The groups come together to learn, share information and resources, network, and identify hepatitis C related needs in the community. Committees form to work on projects in order to meet needs identified by the community.

May 2016 Hep Free NYC Newsletter
National Hepatitis Testing Day | Hispanic Hepatitis Awareness Day
Hep Free NYC Awareness Event on the Steps of City Hall
May 12 (11 AM - Noon)

Bring your organization banner and invite others!
*If you are planning on hosting a hepatitis screening or event for Hepatitis Testing Day, let us know and we will post to our Hep Free NYC Calendar!

Upcoming Events

 Conference | NYS Clinical Conference on HIV and Hep C. Fri, May 6. NYS DOH.

Training | Hep C 101. Tue, May 10 (9 - 5 PM). NYC Health Dept.

Webinar | Hepatitis Awareness Month Roundtable. Tue, May 10 (4:30 - 5:30 PM). HepCure.

Training | Intro to HIV, STIs and Hep C. Thu, May 12 (9 AM - 12 PM). NYS DOH.

Training | Health Literacy in HIV, STI, and Viral Hepatitis Patient Care. May 13 (9 - 12 PM). NYS DOH.

CME Symposium | HIV and Hep C Symposium. Sat, May 14, NYC. Clinical Care Options. For medical providers.

Webinar | Talking to Clients about Hep C Treatment. Tue, May 24 (12 - 2 PM). Harm Reduction Coalition.

Video Chat | Combating Hep B Among High-Risk Communities: A Government-Community Partnership. Wed, May 25 (3 - 4 PM). Hep B United.

Training | Hep C Prevention with Young PWID. Thu, Jun 2 (10 AM - 5 PM). Harm Reduction Coalition.

Conference | 11th National Harm Reduction Conference. November 3-6, San Diego, CA. Harm Reduction Coalition. Abstracts due May 1.

Conference | 4th US Conference on African Immigrant Health. September 15-18, Queens NY. Office of Minority Health. Abstracts due June 23.

>> See more Events
>> See Hep Free NYC Meeting Highlights
View all newsletters, here.

Subscribe to this Newsletter

Join Us



GI & Hepatology News
GI & Hepatology News is the official newspaper of the AGA Institute and provides the gastroenterologist with timely and relevant news and commentary about clinical developments and about the impact of health-care policy. The newspaper is led by an internationally renowned board of editors.

GI & Hepatology Newsletter

May 2016 PDF ( 11.5MB) |

The end of hep B and C in United States
NAS prepares report on ending transmission, morbidity.
Hep C transmission peaked in 1950
Infection not related to baby boomer lifestyle
View all issues

Read breaking news stories now: visit the GI & Hepatology News website.

Stay connected



HepCBC Hepatitis C Education and Prevention Society

The hepc.bull, has been “Canada’s hepatitis C journal” since the late 1990′s and has been published nonstop since 2001. The monthly newsletter contains the latest research results, government policy changes, activities and campaigns you can get involved in, articles by patients and caregivers, and a list of support groups plus other useful links.

April Newsletter
Treatment by Primary Care Physicians and Nurse Practitioners? - Two Epidemics, Two Cascades of Care? - Ten Years After (still suffering from a treatment rash!)

Hep B and Liver Cancer Re-Activation Following Treatment -Call for Patient Input (sofosbuvir/velpatasvir) - Photos from Vancouver Zoomer Show

Dr Sam Lee's Shocking "Expert Witness" Statement - Generics Equivalent in Efficacy, Safety to Name-Brand DAAs - "Get Tested" Bus Ads Coming to Northern BC - Sunvepra™ (asunaprevir) Approved for Sale in Canada

Upcoming Conferences - Join "HepCBC Liver Warriors" Team in 2016 Victoria Marathon! - "SVR" Honour Roll - Compensation questions?

Genotype 1a Peaked No. America in 1950s, Likely Driven by Changes in Medical Practices - Federal Money Grab from 1986-1990 Blood Scandal Victim Compensation Fund - Holkira Pak™ Update - Peppermint Patti's FAQs 

May Newsletter
Please Check Back... 

View All Newsletters, Here

Stay Connected

Find out if you should get tested or vaccinated for viral hepatitis by taking CDC’s quick online Hepatitis Risk Assessment.

Hepatitis C Lessons on a Chalkboard - 60 sec

Published on Apr 12, 2016
This video PSA presents important facts about why people born from 1945-1965 should get tested for Hepatitis C. The video reinforces messages with visual depictions of the facts drawn by artists on a chalkboard, and ends with the call for people born from 1945-1965 to talk to their doctor about getting tested for Hepatitis C

No comments:

Post a Comment