Sunday, February 3, 2019

2019 February Hepatitis Newsletters: Finding Support

Valentine's Day is almost here, either you love it or hate, right? Me. Hate it. In any event, while you're waiting for either flowers, candy, diamonds or a sandwich, sit back and read this month's viral hepatitis newsletters, written by inspiring individuals that spread hope and love all year long.

Finding Support
Finding support online can be extremely useful when you're faced with decisions about HCV treatment or care. But remember folks, a support site, forum, or blog, should offer only personal experiences, and support, not medical advice. Understand any information you receive about HCV treatment, liver health or medications doesn't come from medical professionals and is not meant to replace your professional care. With that said, I highly suggest you check out the following support forums and my fav Facebook page.

Karen Hoyt's Facebook Page - Happy Valentine's Day!
Visiting Karen's Facebook page is like taking a class without leaving home. Karen covers it all, from tips on liver health, creating a well-balanced meal, to her own journey living with cirrhosis, liver cancer, and the emotional ups and downs of a lifesaving liver transplant. Visit her website and YouTube channel as well. Not done yet, if you haven't read her book, check it out, here.

Hep Forums 
Hep Forums  is a safe place to learn, share and exchange ideas. The forum provides moderated peer-support for people who have Hepatitis B, C or a co-infection. View all posts here, or start with this recent post: Started Epclusa today 2/1/2019.

Recommend Support Forums
Hep Forums
Hep C Warriors
Hep
Hep is an award-winning print and online brand for people living with and affected by viral hepatitis. Offering unparalleled editorial excellence since 2010, Hep and HepMag.com are the go-to source for educational and social support for people living with hepatitis.
Stay Updated
News 
Highlights
Want to Stop Fatty Liver Disease? Cut Back on Sugary Drinks!
Undiagnosed Hepatitis Common Among People With Cancer
Start here...

 infohep.org
The aim of infohep.org is to develop a high-quality online resource to increase awareness of viral hepatitis, its treatment, and the needs of people living with viral hepatitis in Europe.
The Latest News & Research:
January Bulletin 
Highlights
Lancet Commission recommends actions to support elimination of hepatitis C
HCV modelling study
HIV/HCV co-infection and end-stage liver disease
Survival after liver cancer diagnosis is shorter in people living with HIV
Conditional cash transfers to encourage hepatitis C diagnosis and treatment in people who inject drugs
Barriers to HCV treatment in people who inject drugs
TAF for hepatitis B
AbbVie legal challenge in UK tender exercise dismissed
Begin here...

 HCV Advocate
The HCV Advocate newsletter is a valuable resource designed to provide the hepatitis C community with monthly updates on events, clinical research, and education.
What We Need to Eliminate HCV
I Heart Liver
Hepatitis Headlines

Stay Updated
What’s Up! News about the upcoming issue of our last HCV Advocate Newsletter this March, our patient HCV video and Packhealth – a patient resource.
Begin here.....

World Hepatitis Alliance
The World Hepatitis Alliance goal is to achieve a world free from viral hepatitis, World Hepatitis Alliance provides global leadership in awareness-raising, advocacy and in efforts to find the missing millions.
Newsletter
In The News

For Your Viewing Pleasure
Highlights
Describe recent advances in HCV management
Review current barriers to HCV screening, testing, and linkage to care
Discuss effective approaches to overcoming barriers to HCV elimination
Click here to read our latest newsletter.

New York City Hepatitis C Task Force 
The New York City Hepatitis C Task Force is a city-wide network of service providers and advocates concerned with hepatitis C and related issues. The groups come together to learn, share information and resources, network, and identify hepatitis C related needs in the community. Committees form to
work on projects in order to meet needs identified by the community.
Hep C Elimination in People Living with HIV
NYC Hep C Task Force Meeting. February 27 (9 AM -2 PM) @ 208 W 13th St. Support Hep C Elimination in PLWH!
All - Hep Free NYC Newsletters

Hepatitis NSW
Hepatitis NSW provides information, support, referral and advocacy for people affected by viral hepatitis in NSW. We also provide workforce development and education services both to prevent the transmission of viral hepatitis and to improve services for those affected by it.
Stay Current
News Updates

'What was your journey to becoming hep C free?'
Over 40,000 Queenslanders are living with hepatitis C. Find out what it's like for those who have lived with the virus and the journey to being cured.



Hepatitis Victoria
Hepatitis Victoria is the peak not-for-profit community organisation working across the state for people affected by or at risk of viral hepatitis.
View the Latest Newsletter, or relax and listen to a short podcasts interviewing health experts and practioners on topics related to viral hepatitis - have a listen!

 The British Liver Trust 
The British Liver Trust is the leading UK liver disease charity for adults – we provide information and support; increase awareness of how liver disease can be prevented and promote early diagnosis; fund and champion research and campaign for better services.
Highlights
Clare's Story
New publication: Thinking ahead - planning for your future...
Support Groups
Liver Disease Toolkit
Liver disease is one of the five most common causes of premature death in the UK and is the only major cause of death that has a year by year increasing incidence. However, more than 90% of liver disease is preventable. The three major causes of liver disease in adults are alcohol-related liver disease, obesity and metabolic syndrome leading to non-alcohol-related liver disease, and viral hepatitis.
News 
View All Newsletters, here.

The Hepatitis C Trust 
The Hepatitis C Trust is run by patients with the goal of eliminating HCV in the United Kingdom. The Trust’s mission is to reverse the rapidly increasing death toll caused by hepatitis C in the UK until no-one dies from this preventable and treatable disease and, ultimately, it is all but eradicated in this country.
Stay Updated
News
Information
Impact of hepatitis C on the liver
Hepatitis C primarily damages the liver. This can have a number of different effects.

National Viral Hepatitis Roundtable
The National Viral Hepatitis Roundtable (NVHR) is national coalition working together to eliminate hepatitis B and C in the United States.
Strategies to Eliminate HCV in Veterans
This webinar highlighted various programs to engage U.S. Veterans in hepatitis C testing and treatment services in the VA and community settings. See the slides and access the archived webinar
Click here for the slides. Click here for the recording. (Click the link, and then enter the requested information to view the webinar).
View all NVHR newsletters

HepC Challenge - Caring Ambassadors Program
The Caring Ambassadors Program uses a unique approach in our work to address the elimination of viral hepatitis and specifically hepatitis C.
Weekly Updates: Hepatitis C News
Topics include all stories related to hepatitis C as well as personal stories and events. To sign up to receive our weekly newsletter sent to your inbox, click here.

National Institutes of Health
A monthly newsletter from the National Institutes of Health, part of the U.S. Department of Health and Human Services.
February Newsletter
Understanding Emerging Diseases
Protect Yourself from Heart Attack and Stroke
Begin here..

In Case You Missed It
AASLD / EASL HCV Special Conference
February 1-2, 2019
Make sure to check out coverage from this months HCV Special Conference.

The Year Of The Liver
Dr. Joe Galati outlines his recommendations to keep your liver healthy. These tips include reducing alcohol, weight loss, avoid processed foods, regular exercise, getting more sleep, and several others



Recommended Blogs 
Karen Hoyt is devoted to offering support and accurate information to people coping with the effects of hepatitis C.

Lucinda K. Porter
Lucinda Porter is a nurse, speaker, advocate and patient devoted to increasing awareness about hepatitis C.

Hepatitis B Foundation
The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide.

Hep
Hep is an award-winning print and online brand for people living with and affected by viral hepatitis.

Hepatitis NSW
Provides information, support, referral and advocacy for people affected by viral hepatitis in NSW. We also provide workforce development and education services both to prevent the transmission of viral hepatitis and to improve services for those affected by it.

Life Beyond Hepatitis C
Life Beyond Hep C is where faith, medical resources and patient support meet, helping Hep C patients and their families navigate through the entire journey of Hep C.

Canadian Liver Foundation
We strive to improve prevention and the quality of life of those living with liver disease by advocating for better screening, access to treatment, and patient care.

Hepatitis B Foundation
The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide.

HepatitisC.net
At HepatitisC.net we empower patients and caregivers to take control of Hepatitis C by providing a platform to learn, educate, and connect with peers and healthcare professionals.

HIV and ID Observations
An ongoing dialogue on HIV/AIDS, infectious diseases, all matters medical, and some not so medical.

ADRLF (Al D. Rodriguez Liver Foundation)
Al D. Rodriguez Liver Foundation is a non-profit organization that provides resources, education and information related to screening, the prevention of and treatment for the Hepatitis Virus and Liver Cancer.

CATIE 
We connect healthcare and community-based service providers with the latest science, and promote good practices for prevention and treatment programs. As Canada’s official knowledge broker for HIV and hepatitis C, you can count on us for up-to-date, accurate and unbiased information.

Kevin Pho is a practicing physician and most known for his blog KevinMD. Thousands of authors contribute to his blog: primary care doctors, surgeons, specialist physicians, nurses, medical students, policy experts. And of course, patients, who need the medical profession to hear their voices. 

AGA Blog
Gastroenterology and Clinical Gastroenterology and Hepatology, written by Dr. Kristine Novak.

The goal of our publications is to bring people around the world the most current health information that is authoritative, trustworthy, and accessible, drawing on the expertise of the 10,000+ faculty physicians at Harvard Medical School.

Providing physicians with virtual access to specialists can be lifesaving to liver disease patients.

BMC
The BMC series publishes 65 subject-specific journals focused on the needs of individual research communities across all areas of biology and medicine.

Just Because Its Valentines Day
 


HepCBC
In closing may sure you check out a collection of noteworthy hepatitis C news articles in the latest issue of the Weekly Bull, published by the Canadian non-profit organization HepCBC.

Thank for stopping by!
Tina
Posted by at
File Under , , , ,

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)