Thursday, January 5, 2017

January HCV Newsletters - What's New in 2017

2017 January Hepatitis Newsletters

Greetings everyone, welcome to this months index of 2017 Newsletters; read about promising new hepatitis C drugs in development (HCV Advocate - Newsletter), liver transplantation for viral hepatitis (Liver International - Journal Updates) and screening patients for liver cancer (HCV Advocate - Newsletter), with a look back at the most popular stories of 2016.

In The News
Why Sharing May Be The Fastest Way To Transform Rural Health Care
Project ECHO, interview ....
Yes, hepatitis C is my specialty and when I came to New Mexico, which is a rural state, I saw right away the challenge of reaching “last-mile” patients who live hundreds of miles from population centers and medical centers. The question became: how do we get the right knowledge to the right place at the right time so that patients get the care they need at home? That was our starting point.

Exhibit A for Republican Obamacare repeal challenge: people with HIV
Lawmakers are currently considering repealing the massive 2010 U.S. health reform law known as Obamacare as soon as this month.

Black, Hispanic HCV patients more likely to fail DAA therapy
Black and Hispanic patients with hepatitis C virus infection were less likely to achieve sustained virologic response with direct-acting antiviral agents compared with white patients within the U.S. Veterans Affairs health care system, according to recent study results..

What's New in 2017: Express Scripts Adds Hepatitis C Drug Harvoni to National List
On January 1, the hepatitis C virus (HCV) drug Harvoni will be available from Express Scripts’ Hepatitis Cure Value Program.  The program fulfills prescriptions through Accredo, the pharmacy benefits manager’s (PBM) in-house specialty pharmacy, according to Fierce Pharma.

Significant Geographic Disparities Among Causes of Death in the United States
Select counties in Montana, North and South Dakota, and Florida have the highest morality rates from cirrhosis and liver disease. Since 1980, sharp increases were seen in southwestern Oregon and northwestern Texas.

Pamela Anderson Still Healthy Post–Hepatitis C Treatment
Rumors that Pamela Anderson is in a “cancer crisis” following her 2015 hepatitis C virus (HCV) treatment are absolutely not true, according a recent statement from the celebrity’s representatives. In fact, the former Baywatch star is in excellent health — and remains both hepatitis C– and cancer-free following her therapy...

Review The Top HCV News of 2016
Updated Jan 4
Hepatitis C Hot Topics - Research and News of 2016
Take a look back at the top HCV news stories of 2016. Sit back and review a collection of hepatitis C research articles, guideline updates, conference reports, learning activities, and news from around the web.

2017 - 2016
Treating HCV according to genotype news and research.
Offered on this page is research updates with a focus on treating HCV according to genotype using FDA approved and investigational medicines. Information is extracted from news articles, peer-reviewed journals, as well as liver meetings/conferences, research manuscripts and interactive learning activities.
2017 - HCV Genotypes/Treatment
2016 - News Archive

2017 Updates
Latest blog entries: Current research, news and review articles with SVR rates using FDA approved and investigational agents to treat hepatitis C.

Journal Updates
Liver International
Here is an index of a few viral hepatitis articles:
The impact of antiviral therapy for hepatitis C on the quality of life: a perspective / Impact of hepatitis C virus therapy on metabolism and public health / Special populations: treating hepatitis C in patients with decompensated cirrhosis and/or advanced renal impairment / Hepatitis C: efficacy and safety in real life / Novel targets for hepatitis B virus therapy / Future anti- HBV strategies /   Hepatitis B virus : long-term impact of antiviral therapy nucleot(s)ide analogues ( NUC s) / When can we stop nucleoside analogues in patients with chronic hepatitis B? /  Treatment of chronic hepatitis B infection-2017 /  Challenges in warranting access to prophylaxis and therapy for hepatitis B virus infection / From HCV To HBV Cure / The future of liver transplantation for viral hepatitis / The impact of direct antiviral agents on the development and recurrence of hepatocellular carcinoma

Newsletters

HCV Advocate
The HCV Advocate newsletter is a valuable resource designed to provide the hepatitis C community with monthly updates on events, clinical research, and education

January Newsletter

2016 In Review: Check out what our staff picked as the top news of last year.

Under the Umbrella – The Art of Seeing by Matthew Zielske—Matthew discusses the meaning of being an advocate – an inspiring article to bring in 2017

HealthWise by Lucinda K. Porter RN – Lucinda writes and argues for the elimination of hepatitis C in the United States and globally.

AASLD 2016 – Part 2 by Alan Franciscus-I write about drugs in development to treat hepatitis C, monitoring people who are at risk for liver cancer and treating hepatitis C in people who inject drugs.

HCV Advocate Pipeline

What’s Up!
Paper PI – we have decided to close down the Paper PI newsletter since we cover all the news in our News and Pipeline Blog.

HCV and Harm Reduction – we have launched a new series of fact sheets on Harm Reduction. The first piece is an Overview of Harm Reduction by Matthew Zielske.

Easy C Fact Sheet – Hep C Prevention in a Household – A common concern for people living together. This simple fact sheet provides information on how to stay safe

Easy C Fact Sheet – Beware of Hepatitis B – we have revised this fact sheet based on feedback. The actual cases of HBV reactivation are uncommon and occurred with pegylated interferon therapies and the new direct-acting antiviral therapies.

The New York City Hepatitis C Task Force
The New York City Hepatitis C Task Force is a city-wide network of service providers and advocates concerned with hepatitis C and related issues. The groups come together to learn, share information and resources, network, and identify hepatitis C related needs in the community. Committees form to work on projects in order to meet needs identified by the community.

Article | Demonstrating a Model of Hep C Patient Navigation (NYC Health Dept)
January 3, 2017
The NYC Department of Health implemented a patient navigation program, Check Hep C, to address patient and provider barriers to HCV care and potentially lifesaving treatment.

12-12-2016 Citywide Hep C Task Force Meeting Highlights

December Newsletter and Past Newsletter Archives..

HCV Action
HCV Action brings together hepatitis C health professionals from across the patient pathway with the pharmaceutical industry and patient representatives to share expertise and good practice.

Published Jan 2017
Published by the European Liver Patients Association, this report provides an overview of the progress made in tackling hepatitis B and C across different European countries, on the basis of surveys undertaken with patient organizations.
The 2016 Hep-CORE Report: Monitoring the implementation of hepatitis B and C policy recommendations in Europe

Pacific Hepatitis C Network (PHCN)
Welcome to the Pacific Hepatitis C Network (PHCN)‘s second Hepatitis C News in Review Newsletter. This is where we review all of the major current issues and events around hepatitis C and hep C treatments. It is an email that includes links to our recent blog posts—including links to blog posts about Public Health Agency of Canada funding.

December Newsletter
WHAT WOMEN WITH HEPATITIS C EXPERIENCE NEEDS TO BE IMPROVED NOW
HEP C HIGHLIGHTS FROM THE CANADIAN DRUG APPROVAL PIPELINE AND THE LIVER MEETING 2016

Links
Our Top 2016 Hepatitis C Treatment Posts as Clicked by You

Information about hep C treatment
Information about currently approved treatments in Canada and BC
Resources to help in getting ready for treatment

GI & Hepatology News
Over 17,000 gastroenterologists and hepatologists rely on GI & Hepatology News every month to cover the world of medicine with breaking news, on-site medical meeting coverage, and expert perspectives both in print and online. The official newspaper of the AGA Institute was launched in partnership with IMNG in January 2007.

December Newsletter And Past Issues

Weekly Bull
For over a decade HepCBC a Canadian non-profit organization has published an incredible monthly newsletter offering awareness, personal stories and basic information about HCV.

Recently the highly successful newsletter has been retired, however without fail a new publication "The Weekly.Bull" will continue to serve us well, here is the latest issue.

Latest Issue: Weekly Bull

British Liver Trust
The British Liver Trust is the leading UK liver disease charity for adults – we provide information and support; increase awareness of how liver disease can be prevented and promote early diagnosis; fund and champion research and campaign for better services.

December Newsletter here, all Newsletters here.

Dry January and post festivities detoxing
Posted on 4th January 2017
With the festivities over and people maybe thinking about using the new year as a time for resolutions, in an article published today, the Trusts Chief Executive, Andrew Langford states that faddy diets, detox teas and juicing plans may make you feel virtuous, but there’s little evidence they have any real effect.

“If you look after your liver and it functions well, it will detox the body naturally,” he explains.

“The two most effective ways to look after your liver are to watch your alcohol intake and maintain a healthy weight.”

Unfortunately not everyone looks after their liver. Liver disease is the third most common cause of premature death in the UK – with more than 40 people dying from it daily. What’s more, the average age of death from liver disease is 57, compared to 80 for cancer, stroke and lung disease.

However, 90% of liver disease is avoidable, says Andrew.

“We are facing an epidemic of liver disease,” he warns. “Obesity – not alcohol – is now the main cause of liver damage in America. And in the UK, alcohol and obesity-related liver disease is continuing to rise. The real double-whammy is if you’re overweight and you drink too much.”

The article goes on to talk about the effectiveness of ‘Dry January’ with tips on how to Love Your Liver.

Read the full article here

Take the Trust’s online liver health screener here

Sign up to Spruce – the app that helps you to maintain two alcohol free days year round

NIH News in Health
Check out the January issue of NIH News in Health, the monthly newsletter bringing you practical health news and tips based on the latest NIH research.

Features
How to Spot and Prevent Deep Vein Thrombosis
When the Clot Thickens
A blood clot deep in your leg may cause pain, swelling, and more dangerous conditions. Learn to prevent and treat these clots.

Health Capsules
Featured Website: Types of Cancer
There are more than 100 types of cancer. Most are named for the organs or tissues where the cancers occur. Some describe the type of cell that formed the tumor. This site lists dozens of cancer types, along with links to more detailed information

Blogs Around The Web

Hepatitis B Foundation
The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure for hepatitis B and helping to improve the lives of those affected worldwide through research, education and patient advocacy.

Ten Things You Should Know About Hepatitis B and Do in 2017
It’s 2017, and experts around the world continue to study the complex life cycle of the hepatitis B virus in order to find a chink in its armor that will lead to a cure. In 2016, there were successes and disappointments in the research and healthcare arena. Here is what you need to know about hepatitis B in 2017.

HEPATITISC.NET
At HepatitisC.net we empower patients and caregivers to take control of Hepatitis C by providing a platform to learn, educate, and connect with peers and healthcare professionals.

The Fine Line – Pt. 1: I’m on a Boat
By Rick Nash - January 4, 2017
Going on vacation with one of your best friends sounds like it would be an awesome adventure. Unless you have advanced liver cirrhosis, you’re two single dudes, it’s a cruise and you...

A New Year
By Daryl Luster - January 3, 2017
With the close of 2016 and the dawn of a new year it is for many of us a time of reflection on the past year, and a look forward to the...

Food Guilt at the Holidays
By Karen Hoyt - December 31, 2016
During the holiday season, we are surrounded with delicious foods. The tempting smells are in every store you enter. Old family recipes are brought out for baking. Those once a year favorite...

How to Eat Healthy Fast Food
By Karen Hoyt - December 30, 2016
Right now, I’m surrounded by families gathered at circular tables. A low hum of conversation is interrupted by an occasional squeal from a toddler. Most people are popping bitesize bits of lunch...

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Creating a World Free of Hepatitis C
By Lucinda K. Porter
Welcome to my website and blog. My name is Lucinda Porter and I am a nurse committed to raising awareness about hepatitis C. I believe that we can create a world free of hepatitis C. We do this together, one step at a time.

Beyond New Year Resolutions Good Things Come in Small Packages
By Lucinda K. Porter, RN
Although I rarely make new year resolutions any more. They rarely work and when they do, they usually last for about a day or two.

Telling Our Story Is Our Duty to Others
By Lucinda K. Porter, RN
When I tell my story about living with chronic hepatitis C virus infection, it usually begins with the moment I got the virus. Recently I realized that this is not the real beginning. My story starts at the point I decided to make a difference.

HEP - Blog Updates
Hep is an award-winning print and online brand for people living with and affected by viral hepatitis. Offering unparalleled editorial excellence since 2010, Hep and Hep Magazine are the go-to source for educational and social support for people living with hepatitis.

An explanation of hepatitis C-related lab tests.
By Greg Jefferys
Hepatitis C Tests and Test Results: An Overview 
The Benefits of Yoga

Hepatitis C and New Year Resolutions
By Lucinda K. Porter, RN
The healthier you are, the easier it is to live with chronic illness such as hepatitis C or other liver disease. We all know that we are supposed to exercise, eat better, and maintain a normal weight, but doing these things are easier said than done.

Answers to 5 of the most common questions asked about Hep C treatment.
By Connie M. Welch
5 Common Questions and Answers about Hep C Treatment

Healthy You

Detoxing Your Liver: Fact Versus Fiction
The liver is one of the most important organs in the body. Learn the facts — and avoid the myths — about liver health and maintenance. In recent years, many products have flooded the market purporting to detox and cleanse your liver, whether it’s after a weekend of bingeing on food or alcohol, to maintain daily liver function, or to repair an already damaged liver. Tinsay Woreta, M.D., a Johns Hopkins hepatologist, is here to help debunk persistent liver health myths and determine the value of cleanses....

Wishing you all a healthy and prosperous new year.
Tina

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