tag:blogger.com,1999:blog-8358569997429791810.post2206711249273572116..comments2024-03-18T05:46:06.835-04:00Comments on HCV New Drugs: Hepatitis C Drug Incivek (telaprevir); What are the side effects ?HCV New Drugshttp://www.blogger.com/profile/16049941177490552710noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8358569997429791810.post-64452463696367748452013-06-08T14:24:57.394-04:002013-06-08T14:24:57.394-04:00I am so sorry to read of your experience. I have w...I am so sorry to read of your experience. I have witnessed Stevens Johnson Syndrome(SJS) first hand, a family member was rushed to ER over a year ago. The child was ten at the time, it was horrifying. Thank you for commenting, as you mentioned the article was posted in 2011, however I did include updates. After reading your comment I added a link today to an article and video from Healio. <br />The Experience with Telaprevir-Based HCV Therapy in Community Practice Does Not Mirror the Clinical Trials Data,” at Digestive Disease Week 2013.<br />Maheshwari notes that the morbidity associated with telaprevir-based treatment is much greater in real-world practice than had been indicated previously. He urges caution among clinicians in the administration of telaprevir, and stresses the need for rigorous side-effect management protocol and adequate long-term follow-up for patients with HCV receiving this treatment. <br />View the video <a href="http://hepatitiscnewdrugs.blogspot.com/2013/06/video-hepatologist-urges-caution-among.html" rel="nofollow">HERE</a> <br /><br />Thank you againHCV New Drugshttps://www.blogger.com/profile/16049941177490552710noreply@blogger.comtag:blogger.com,1999:blog-8358569997429791810.post-68012786548773956202013-06-07T18:28:37.023-04:002013-06-07T18:28:37.023-04:00It is absolutely untrue or this is outdated inform...It is absolutely untrue or this is outdated information,under the "Telaprevir's safety profile" the blog states, "As mentioned during triple therapy (telaprevir, peginterferon alfa, and ribavirin) skin rashes are common, remembering telaprevir-assoicated rash is often mild and not serious in most cases." It almost killed me and I mean I am lucky to be breathing, three doctors have said I am lucky to be alive. <br />Imagine this, you are expecting side effects such as rash, skin problems, itching etc. Sure enough you get this reaction. But the rash becomes even with the skin, redish/purplish blotches, it looks like you have walked through a fire. Just at what point is an everyday person supposed to know what constitutes "serious". Especially not being informed of the severe potential and what to look for. I had kept in touch with my doctor. She called in anti-histimanes that helped in a minor way. This reaction was rapidly manifesting itself into Steven-Johnson's syndrome. Who tells you that can happen? I had never heard of it. But, was suspicious and did research in the internet until I found a skin lesion that looked like mine. It looked like ringworm. I lost a layer of skin, my eyes were swollen so bad I could barely drive to a doctor. My checks were like patches of leather and my face had welts, my mouth looked like trush, my inner eyelid, lower, even got an abrasion in it. I was put on prednisone which caused hallucinations. I am under treatment for extreme depression which the doctor knew about. I was confused, didn't know if I was imagining things or it was real. I had a reaction that was symtomatic of a stroke and lost control of my left arm and hand, the left side of my face dropped. I live alone, have epilepsy, severe depression and I relied on my instincts and they were right when I went to the ER. They were tempted to admit me to the burn unit which most patients with Steven-Johnson's go to for treatment. I was put in a high risk clinic in the hepatology unit and told Hep C was no longer the main life threatenting concern but the reaction was.<br />I am so thankful for my life and my ability to make it through this alone, with the help of one guardian angel that got my meds, ice, water, ensure. I was too weak to walk and lost a layer of skin that made it too painful to wear clothes. I couldn't keep anything down not even meds and was afraid I would start having convulsions. I didn't. Thank God and my wonderful neurologist from the University. People in my little town knew about this illness surprising enough. The ER doc and a therapist were miracles and I owe them for their concern for my life.<br />It's a year later, I have some ugly scars, still healing on my head from the blisters, have psoriasis, and other skin issues. I can deal with that I am alive and have my strength back. Ensure, avocados, and water with lots of vitamin C helped me heal. I had to stop treatment early but had endured about 9 weeks of treatment and am now in remission. My God I made it and am in remission. I lay down on my bed one day, wearing my bare minimum, and prayed that the Lord would walk me through the Valley Of Shadow of death. Otherwise I was not afraid, I wanted to see my mother. I know now, I was dilirious. But, I didn't want to live and not be able to live as I had but, I am not healthy, strong, working out a little, eating greens, organic, and lots of purified water and milk thistle.<br />If you have a rash and it gets to looking like a very bad rash, painful, any peeling get to the doctor and insist on treatment. Ask about Steven- Johnson's syndrome. If you have a sore or rash that is round and has a red circle around it. FEAR it.<br /> <br /><br />Anonymousnoreply@blogger.com